Cambridge Rare Disease Network launch


In celebration of Rare Disease Day, the Cambridge community is launching a new initiative, the Cambridge Rare Disease Network (CRDN).

On behalf of CRDN, we would like to invite you to our Launch Event at the Cambridge Judge Business School on April 2nd. We will focus on the topic of “Parent Entrepreneurship in Rare Diseases”. More details on the format of the event below.

Register here: https://eventbrite.co.uk/event/15589190689/

Our outstanding speakers include Dr Nick Sireau, Founder of the AKU Society and the charity Findacure; Ms Kay Parkinson, Founder of patient group Alstrom Syndrome Society; Dr Will Evans, Trustee of the Niemann-Pick Disease Group, and Dr Cesare Spadoni, Founder of aPODD Foundation.

CRDN is a new non-for-profit organisation aiming to create rare disease awareness and build a community within the Cambridge area. We aim to engage and connect relevant stakeholders from Cambridge University and the Cambridge Biomedical Cluster in order to address rare diseases more effectively. Please, find more details about CRDN on our website. Our supporters include Genetic Disorders UK, Findacure, Utah Rare, Cambridge Judge Business School, One Nucleus and Stevenage Bioscience Catalyst, amongst others.

CRDN is also proud to support the crowdfunding campaign from AKU Society: Cure Black Bone Disease: Time is Running Out! http://igg.me/at/curebbd.
Please, do participate and help us make a difference for patients affected by Black Bone Disease today!

We are very much looking forward to having you at our launch event. For more details about the initiative, check out our website at http://www.camraredisease.org.
‚Äč

Launch Event details:

Title: “Parent entrepreneurship in rare diseases ”
Date: April 2nd, 2015
Location: Cambridge Judge Business School, LT1

Speakers:
– Dr Nick Sireau, Founder of AKU Society and Findacure
– Ms Kay Parkinson, Founder of Alstrom Syndrome Society
– Dr Will Evans, Trustee of Niemann-Pick Disease Group
– Dr Cesare Spadoni, Founder of aPODD Foundation

Format:
17.00: Doors open.
17.30: Lecture/panel discussion and Q&A’s
18.45: Reception.
20.00: End of event.